• 12239427_1018951031480866_4985048972655610218_o

    The Impact of 13thirty Cancer Connect

    Guest Post by Dan Faliy, 13thirty Intern

    Of all my volunteering experience and contributions to various charitable organizations, I have never felt like I was making a difference more than when I spent six weeks with the incredible staff of 13thirty Cancer Connect.

    Upon starting my internship, the atmosphere of love and support was overwhelming — and I knew that I would truly enjoy my time at this organization. Simply walking through the Center and seeing the pictures of the teens and young adults who call 13thirty “home” was quite powerful. 13thirty has had such a profound effect on their lives; one family even brought a pair of boxing gloves signed by Mohammed Ali, which were anonymously gifted to their son (Louis D’Amanda III) shortly before he died, and gave them to 13thirty as a reminder of the strength, perseverance, and fighting spirit that embodies AYA cancer survivors.

    I was able to help in a variety of ways as an intern — from helping with Journeys preparation, to joining the Cancer Outreach of Rochester, to coming up with creative names for the quilts donated to the Center from a generous local quilter for 13thirty’s annual holiday sale.

    As a member of the medical profession, evidence is very important to me whenever deciding on a recommendation. One of the tasks that I was assigned was to analyze this evidence and organize the information. 13thirty, along with all of the great things they do for teens and young adults impacted by cancer, also helps parents through the difficulties of having a child with cancer. One of the programs focuses on the mental and physical health of the parents and their progress is monitored weekly. Every parent enrolled in the program had, without exception, improved both physically and mentally from the beginning to the end of the eight weeks.

    This was very important to me because it is obvious without seeing anything on paper that the organization does so much to help everyone involved — but to have physical proof was the icing on the cake.

    I could tell countless stories about how much I enjoyed my time with 13thirty Cancer Connect, but actions speak louder than words. I will make my appreciation known by continuing to be involved with the organization as a volunteer, and once I get out of school, a donor. The staff is incredible and are continuously working hard to support AYAs and their families. I encourage anyone who is interested in helping those impacted by cancer to offer your services, your time, and your support to 13thirty Cancer Connect.


    ROC the Day 2017 is November 28th! It’s a 24-hour window of giving in our community, and here at 13thirty, we want to continue to make a positive impact on our teens, young adults, and families. We appreciate all the support from our generous donors — without YOU, none of this would be possible! Please click the link and choose 13thirty Cancer Connect for your ROC the Day contribution! Thank you!

    ROC_logo

  • 13thirty-Journeys-2017-post

    Celebrating Life at Journeys!

    On November 4, we will gather once again to celebrate the lives of all the teens and young adults with cancer that we have been privileged to know and love over the years. This will be the 16th Journeys, our Annual Celebration of Living!

    If you’ve been to Journeys, you know how special this night is. If you’ve never been, I hope this will be the year you will join us because Journeys is unlike any other charity gala. In fact, we don’t call it a gala because there is no formal dress, the special themed centerpieces are fashioned on my dining room table, and there are only a few, short speeches! We call it a Celebration because that’s what we do.

    We celebrate all the kids who have inspired us to be the best we can be and to give as much as we’re able.

    Past 13thirty members, whose bonds of friendship were forged years ago, reunite as if no time or space has separated them. Present members welcome potential new members in friendship. Our families share stories with common themes and guests who have not been touched by adolescent and young adult cancer are forever changed by the energy in the room.

    During the cocktail hour, student groups provide the music, enthusiastic volunteers sell raffle tickets and corks for the wine pull, while delicious appetizers are passed by the wonderful staff of Creative Caterers. After dinner, the program starts with our time-honored, candle lighting ceremony, during which we remember our friends who — though gone — continue to warm our hearts with their light. We recognize special folks who have helped us. This year’s “Corporate Sponsor Salute” goes to ValPak of Rochester and Dr. Barbara Asselin will receive the “Make a Difference Award.”

    And then, it’s time for the highlight of the night: The kids’ performance!

    Each year, we have a theme around which the “kids” of 13thirty Cancer Connect craft a presentation that will give our guests an authentic view of what it’s like to be a teen or young adult with cancer. As you might gather from our invitation, this year’s theme is “Bridges” —  but I’m not going to say any more. You’ll just have to come and see for yourself what we’ve put together for you! We are thrilled to be working with Larry Moss and Kelly Cheatle from Airigami (airigami.com) this year. Here’s a clue – there are balloons involved. Lots of them! Local poets, Charlie Cote and Danielle Shied, helped the kids put feelings to words and our friend Dan Roach, as always, makes us sound and look great!

    It’s going to be an amazing night and I hope you will be there because if you are, you will see what keeps me going every day.

    When Melissa died, our hearts were forever shattered but I knew we were strong enough to carry on, to continue living, to somehow put one foot in front of the other. What I didn’t know was just how much better I could be, how much more I could love, how much joy I would find in the young people I work with every day. They are the beacons of hope in this (sometimes) dark world. They rise above the small things and keep focus on what’s important. They truly live and love life and I am so very proud of them all.

    I promise you, Journeys is a night you don’t want to miss! You can RSVP online until Oct. 26 at www.roc.13thirty.org.

    See you on November 4th!


    About the Author

    lauren-spiker-1Lauren Spiker is our founder, executive director, and chief visionary with a pulse on what’s happening in the world of AYA oncology. Her dreams are big and bold!